Thanks for finding me -- I'm assuming you heard the TAL piece about Matt and Trish, and went a-Googling. If you have any questions for me, please either leave a comment on this post, or you can get my email address in the sidebar (to the right of this post).
If you're concerned that you might have narcolepsy with cataplexy, I can't offer you medical advice, but I can encourage you to read up on the condition. I'd also recommend that you talk to a physician who can refer you to a neurologist and/or a sleep doctor. It's a hard diagnosis to pin down, so you'll need to be your own advocate (as with many conditions), and be aware that there are other disorders with some similar symptoms. I personally have obstructive sleep apnea (marked by excessive daytime sleepiness and, in my case, insanely loud snoring), now effectively treated with a CPAP machine. Clarification: some listeners have mixed up who actually has narcolepsy with cataplexy -- it's Matt, not me. I just told his and Trish's story.
If you have your own story of living with a disease (narcolepsy with cataplexy or otherwise), please email me. I'm working on a project to collect such stories, and would welcome your contribution.
